The Carer.

In general terminology a carer is someone who regularly provides support to another person or persons who are sick, disabled, very young or elderly. Lupus can strike in any of these categories and dependent upon the severity of the condition, the carers role can vary from intense involvement for long or short periods, to that of an observer monitoring and reacting to fluctuating changes in the sufferers condition.

My Experience

As a carer of a lupus sufferer, I recognise that athough the condition cannot at present be cured, it can be stablised. Using the correct mediction and accepting a re-defined state of well-being for the sufferer,a reasonable quality of life can be attained. You cannot turn the clock backwards to a pre-lupus state, but you can move forward and learn to live with lupus, and not be controlled by the desease. Patience, time, love and understanding are the building blocks needed by the carer to support the sufferer.

I like to think that mastering lupus is a joint effort. The word "lupus" is my foundation to a descriptive journey towards acceptable stability.

Look, learn, listen and most of all LOVE

Understanding that the goal often appears to be uphill but do not underestimate what can be achieved.

Patience and persistance makes the journey a PARTNERSHIP

Unceasing commitment.

Support, solicitude and SMILE in the face of adversity.

 

Your Experiences would be very much appreciated.